About Everyday Extraordinary, Ceiling Tracks & Sky Smiles
My Arrival
My Arrival
My Arrival
The day Ethan was born, the universe got louder and quieter at the same time. Louder with fear, love, and all the questions I didn’t have answers to yet—quieter because nothing else mattered except him. That was the start of our story: not perfect, not simple, but real, and filled with the kind of love that makes you braver than you ever thought you could be.
Growing up
My Arrival
My Arrival
Ethan growing up hasn’t been a straight line—it’s been a series of adaptations, adjustments, and learning curves. We’ve had to become experts in things we never planned to understand: equipment, therapies, health decisions, and the daily reality of complex care. But through it all, Ethan has remained Ethan—strong, stubborn in the best wa
Ethan growing up hasn’t been a straight line—it’s been a series of adaptations, adjustments, and learning curves. We’ve had to become experts in things we never planned to understand: equipment, therapies, health decisions, and the daily reality of complex care. But through it all, Ethan has remained Ethan—strong, stubborn in the best way, and quietly determined. He doesn’t need to fit into the world’s version of “normal” to have a full life. He has his own way of communicating, his own way of shining, and he’s changed everyone around him for the better.
Who i am
My Arrival
Who i am
When I look at Ethan now, I don’t just see my child—I see the man he’s become. He’s grown into himself in ways that have nothing to do with walking, talking, or ticking the boxes people use to measure success. Ethan has presence. He has personality. He has a way of communicating that is entirely his, and when you really know him, you und
When I look at Ethan now, I don’t just see my child—I see the man he’s become. He’s grown into himself in ways that have nothing to do with walking, talking, or ticking the boxes people use to measure success. Ethan has presence. He has personality. He has a way of communicating that is entirely his, and when you really know him, you understand him. He’s taught me that strength can be quiet, that dignity is built into the everyday, and that a full life is made from connection, comfort, and being seen for who you are.
About Everyday Extraordinary
Our Story
I started this website because Ethan’s life is worth writing about. Not the “inspirational soundbite” version—the real version. The one made up of routines, tiny wins, hard days, brilliant smiles, and the quiet ways he tells us exactly who he is.
This is a space where I can share Ethan’s world as we live it: what helps, what doesn’t, what makes him laugh, what makes him comfortable, and what makes him feel safe. I also want to change the way people think about disability and complex needs—because Ethan isn’t a tragedy, and he isn’t a headline. He’s Ethan. And he has a life that is full, important, and deeply human.
Our Team of Extraordinary!
Lauren
Sarah-Jane
Sarah-Jane
Senior Complex Care Assistant
Lauren is a key member of the care team, providing high-quality, person-centred support within a complex neurological care setting.
As a senior on shift, she helps maintain day-to-day standards, supports safe delivery of care, and ensures routines are followed consistently—particularly where complex needs req
Senior Complex Care Assistant
Lauren is a key member of the care team, providing high-quality, person-centred support within a complex neurological care setting.
As a senior on shift, she helps maintain day-to-day standards, supports safe delivery of care, and ensures routines are followed consistently—particularly where complex needs require precision, calm communication, and strong attention to detail.
Recently trained in clinical skills and CHAPS, and undertaking her NVQ Level 3 in Health and Social Care.
Lauren is known for her reliable, steady approach and her ability to lead by example. She supports new staff during induction, reinforces best practice in moving and handling and personal care, and works closely with the MDT to embed therapy goals into everyday routines.
Her focus is always on dignity, comfort and safety—ensuring the individual is not only well cared for, but truly included and understood.
Sarah-Jane
Sarah-Jane
Sarah-Jane
Case Manager/ CQC Regulator
Sarah-Jane provides senior governance, compliance oversight and regulatory leadership across the service, ensuring standards are robust, auditable and aligned with best practice.
She supports the strategic and operational framework that underpins safe, consistent care delivery—particularly within complex neurol
Case Manager/ CQC Regulator
Sarah-Jane provides senior governance, compliance oversight and regulatory leadership across the service, ensuring standards are robust, auditable and aligned with best practice.
She supports the strategic and operational framework that underpins safe, consistent care delivery—particularly within complex neurological care environments where clear systems, accountability and risk management are essential.
Sarah-Jane works closely with the operational lead and wider team to maintain strong clinical governance, oversee quality assurance processes, and ensure policies, documentation and workforce practices are implemented effectively.
Her role supports a culture of high standards, learning and continuous improvement—strengthening the service’s ability to deliver safe, person-centred care day in, day out.
Sarah-Jane’s focus includes:
- Regulatory compliance, governance oversight and quality assurance
- Policies, procedures and audit systems to support safe practice
- Risk management and escalation frameworks
- Workforce standards: supervision structures, training expectations and competency assurance
- Supporting consistent documentation and evidence-based care planning
- Collaborative MDT working and service development
Everleigh
Sarah-Jane
Everleigh
Manager
Everleigh is the operational lead behind a bespoke, home-based complex care model, providing hands-on management and clinical oversight within a high-acuity setting.
With senior leadership experience across care services since 2007, Everleigh brings a strong focus on quality assurance, documentation, and safe systems of work—ensuri
Manager
Everleigh is the operational lead behind a bespoke, home-based complex care model, providing hands-on management and clinical oversight within a high-acuity setting.
With senior leadership experience across care services since 2007, Everleigh brings a strong focus on quality assurance, documentation, and safe systems of work—ensuring care delivery is consistent, auditable and aligned to best practice.
Currently Studying a Masters in Healthcare Leadership.
Everleigh is NVQ Level 5 qualified in Leadership and Management (Adult Care), IQA (Internal Quality Assurance Level 4) and a qualified healthcare trainer, with a practical, coaching-led leadership style that builds confident, competent teams.
Her approach blends high standards with humanity: safeguarding, inclusion, dignity, and compassionate communication are embedded into the culture she builds.
Alongside operational leadership, Everleigh is an advocate for mental health awareness in healthcare and is committed to challenging stigma, improving practice, and raising standards across the sector.
Daniah
Recruiting
Everleigh
Complex Care Assistant
Daniah is a valued member of the care team, delivering compassionate, person-centred support within a complex neurological care environment.
She is known for her gentle, patient approach and her ability to build trust through consistent, respectful care—supporting comfort, dignity and meaningful connection throughout
Complex Care Assistant
Daniah is a valued member of the care team, delivering compassionate, person-centred support within a complex neurological care environment.
She is known for her gentle, patient approach and her ability to build trust through consistent, respectful care—supporting comfort, dignity and meaningful connection throughout the day.
Daniah works closely with the wider team to follow detailed care plans, support therapy carryover, and maintain safe routines across personal care, transfers and daily activities.
She takes pride in doing the fundamentals exceptionally well—observing changes, communicating clearly, and ensuring care is delivered in a way that feels calm, reassuring and individualised.
Recruiting
Recruiting
Recruiting
Complex Care Assistant
Recruiting
Recruiting
Recruiting
Complex Care Assistant
Our Team of Extraordinary!
Our Physiotherapy Team
Our Occupational Therapy Team
Our Occupational Therapy Team
Our physiotherapy team specialises in neurological rehabilitation, delivering evidence-based, person-centred therapy that focuses on function, comfort, and long-term quality of life. They work with complex neurological conditions and acquired brain injury, supporting people to maximise movement, manage tone, reduce pain, and build consis
Our physiotherapy team specialises in neurological rehabilitation, delivering evidence-based, person-centred therapy that focuses on function, comfort, and long-term quality of life. They work with complex neurological conditions and acquired brain injury, supporting people to maximise movement, manage tone, reduce pain, and build consistent progress through structured, goal-led programmes.
Areas of expertise include:
- Acquired brain injury and complex neurological conditions
- Postural management, positioning, and 24-hour movement plans
- Tone management and strategies to reduce spasticity
- Functional movement, transfers, and handling programmes
- Goal setting, outcome tracking, and family/staff education
Our Occupational Therapy Team
Our Occupational Therapy Team
Our Occupational Therapy Team
Our OT input is practical, outcomes-focused and embedded into daily life. They assess function, posture, sensory needs and fatigue, then translate this into clear plans that staff can follow consistently across shifts—covering everything from seating and positioning to equipment use, access to activity, and strategies that reduce distres
Our OT input is practical, outcomes-focused and embedded into daily life. They assess function, posture, sensory needs and fatigue, then translate this into clear plans that staff can follow consistently across shifts—covering everything from seating and positioning to equipment use, access to activity, and strategies that reduce distress and discomfort.
Areas of expertise include:
- Functional assessment and goal-led OT planning
- Seating, positioning and postural support across the day
- Manual handling optimisation in partnership with physiotherapy
- Equipment and environmental adaptations (home, bathing, mobility, access)
- Risk assessment, fatigue management and routine development
oUR SPEECH & LANGUAGE TEAM
oUR SPEECH & LANGUAGE TEAM
oUR SPEECH & LANGUAGE TEAM
Our Speech & Language Therapy (SaLT) team supports people with complex needs and neurological conditions to communicate, connect, and participate in everyday life as fully as possible. We deliver evidence-based, person-centred intervention across communication, cognition and swallowing, with a strong focus on safety, comfort, and qualit
Our Speech & Language Therapy (SaLT) team supports people with complex needs and neurological conditions to communicate, connect, and participate in everyday life as fully as possible. We deliver evidence-based, person-centred intervention across communication, cognition and swallowing, with a strong focus on safety, comfort, and quality of life.
They work closely with families and the wider MDT to build consistent routines that staff can confidently follow day to day. This includes detailed guidance for communication strategies, AAC systems, mealtime and saliva management, and dysphagia risk reduction—ensuring support is practical, embedded, and sustainable.
Areas of expertise include:
- Neurological communication difficulties (aphasia, dysarthria, cognitive-communication needs)
- AAC support and communication partner training
- Dysphagia assessment, mealtime strategies and risk reduction
- Oral care and saliva management support
- Person-centred communication profiles and care-plan integration
oUR mUSIC THERAPY TEAM
oUR SPEECH & LANGUAGE TEAM
oUR SPEECH & LANGUAGE TEAM
Our Music Therapist is an experienced music therapist who specialises in working with people with complex needs, including neurological conditions and acquired brain injury. She delivers person-centred sessions that are carefully paced and responsive, prioritising comfort, safety and meaningful engagement.
Approach includes:
- Building ther
Our Music Therapist is an experienced music therapist who specialises in working with people with complex needs, including neurological conditions and acquired brain injury. She delivers person-centred sessions that are carefully paced and responsive, prioritising comfort, safety and meaningful engagement.
Approach includes:
- Building therapeutic relationships through responsive musical interaction
- Supporting regulation and relaxation using rhythm, breath, tempo and familiar music
- Encouraging communication attempts through choice-making, turn-taking and vocalisation
- Adapting sessions to physical presentation (fatigue, tone, positioning) and sensory tolerance
- Recording outcomes and collaborating with the wider MDT to align therapy with shared goals
Everyday Extraordinary, Ceiling Tracks & Sky Smiles: Exploring the World of Technology
Blyssful
We use Blyssful as a core part of Ethan’s care delivery and governance, because it gives us one structured place to manage the day-to-day running of a complex package safely and consistently. It supports clear task allocation, shift visibility, and real-time recording, so carers are working from the same expectations rather than relying
We use Blyssful as a core part of Ethan’s care delivery and governance, because it gives us one structured place to manage the day-to-day running of a complex package safely and consistently. It supports clear task allocation, shift visibility, and real-time recording, so carers are working from the same expectations rather than relying on memory or informal handovers. For Ethan, where routine, clinical safety, and accountability matter, Blyssful helps us evidence care delivery, maintain continuity across staff, and reduce risk through consistent documentation. It also strengthens professional oversight by making it easier to monitor completion, identify gaps early, and demonstrate that our care is not only person-centred, but auditable and compliant—supporting safeguarding, quality assurance, and a higher standard of communication across the wider MDT.
Atlas EMAR
We use ATLAS eMAR to manage Ethan’s medication administration in a controlled, auditable way that aligns with best practice for complex care. By moving from paper-based records to an electronic MAR, we maintain clear, time-stamped evidence of what has been administered, by whom, and when—supporting safe handovers, reducing transcription
We use ATLAS eMAR to manage Ethan’s medication administration in a controlled, auditable way that aligns with best practice for complex care. By moving from paper-based records to an electronic MAR, we maintain clear, time-stamped evidence of what has been administered, by whom, and when—supporting safe handovers, reducing transcription errors, and strengthening accountability across the team. ATLAS eMAR also supports consistent adherence to medication protocols (including PRN decision-making, omission reasons, and escalation where doses are delayed or missed), and provides a reliable audit trail for oversight, governance, and safeguarding. In a package like Ethan’s—where medication safety is high-risk and clinical routines must be consistent—ATLAS eMAR helps ensure accuracy, transparency, and continuity across all staff and shifts.
Connecteam
Connecteam
We use Connecteam to support the workforce side of Ethan’s care package—keeping staffing organised, compliant, and consistent across shifts. It helps us manage rotas and availability, track attendance and timekeeping, and maintain clearer communication without relying on informal channels. For a high-dependency package like Ethan’s, this
We use Connecteam to support the workforce side of Ethan’s care package—keeping staffing organised, compliant, and consistent across shifts. It helps us manage rotas and availability, track attendance and timekeeping, and maintain clearer communication without relying on informal channels. For a high-dependency package like Ethan’s, this matters because safe care depends on the right staff being in the right place at the right time, with clear expectations and reliable oversight. Connecteam also supports accountability by giving a documented record of shift activity and key communications, strengthening operational governance and reducing the risk of gaps in cover, missed updates, or confusion around responsibilities.
About Everyday Extraordinary, Ceiling Tracks & Sky Smiles
Caring for care
We use Caring for Care training because it gives our team a consistent, recognised foundation of learning that aligns with safe practice, compliance expectations, and evidence-based standards. In Ethan’s package, care is complex and high-risk, so we cannot rely on informal “on the job” learning or individual habits—training has to be stru
We use Caring for Care training because it gives our team a consistent, recognised foundation of learning that aligns with safe practice, compliance expectations, and evidence-based standards. In Ethan’s package, care is complex and high-risk, so we cannot rely on informal “on the job” learning or individual habits—training has to be structured, trackable, and refreshed. Caring for Care supports this by providing accredited or widely accepted modules that underpin core competencies such as safeguarding, medication awareness, infection prevention and control, moving and handling principles, MCA/DoLS awareness, professional boundaries, and record keeping. It also supports governance: we can evidence training completion, maintain a clear training matrix, identify gaps quickly, and demonstrate that staff competency is being built and maintained over time. Ultimately, we use it to protect Ethan’s safety and dignity while also protecting staff by ensuring they have clear knowledge, consistent expectations, and a defensible standard of practice.
Newlyn
We use Newlyn Healthcare for servicing, PAT testing, and wider equipment checks because Ethan’s package depends on specialist, safety-critical equipment that must be maintained to a demonstrably safe standard. With hoists, tracking systems, charging equipment, pumps, and other electrical devices in regular use, reliable servicing is not
We use Newlyn Healthcare for servicing, PAT testing, and wider equipment checks because Ethan’s package depends on specialist, safety-critical equipment that must be maintained to a demonstrably safe standard. With hoists, tracking systems, charging equipment, pumps, and other electrical devices in regular use, reliable servicing is not optional—it is part of risk management and safeguarding. Newlyn provides scheduled inspections, certification, and clear documentation, which gives us an auditable trail showing that equipment has been tested, maintained, and deemed safe for use. That supports compliance expectations, protects Ethan and staff from avoidable harm (for example, equipment failure, electrical faults, or unsafe moving-and-handling equipment), and reduces downtime by ensuring issues are identified early and rectified promptly. In short, we use Newlyn to keep Ethan’s environment safe, operational, and accountable.
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